Sunday, November 16, 2014

Let the games begin

We have now been in the hospital for almost two days.  Jordon was given his first round of Chemo yesterday evening.  It didn't make him sick at all, the nurse told us he may start feeling the effect in a few days.  The Chemo is really hard on bladders so they are giving Jordon meds that make him have to pee. On top of that they are giving him so many fluids I am surprised  his eyeballs are not floating.  He is up going to the bathroom every hour and almost fills the containers.  As it gets close I always think  ''Ï can't stop once I start it stings" ( those from my generation will get that)

Our first night in the hospital was LONG.  It was worse then having a new born.  The nurse would come in every two hours but with out fail just as we were falling back to sleep the IV poll would start beeping for some reason or another. I lovingly started call the poll "the baby"  The baby is beeping, the baby said that the IV is done, the baby has an air bubble.  

Today Jordon is having his first round of ATG.  It is a nasty drug nicknamed shake and bake.  It is living up to its reputation.  Jordon is freezing and aching pretty badly. They are giving him lots of benadryl so luckily no matter how hard he tries he can's stay awake.  Before they gave him the meds this morning Jordon rode the recumbent bike in his room for 40 min.         
  

Jordon has a tunneled central line. For those non medical people.  It is a permanent IV up by his collar bone.  It has three ports so they can run IV and draw blood and do almost everything else with out having to poke him. This is great for him and the nurses I was about ready to   He will have the central time until March.

We are soooo grateful for face-time.  It is comic relief visiting with our kids.  McKay's little face poking on the screen while one of his sisters are talking to us.  Maya spending more time watching herself make funny faces then talking.  Addie keeps me informed on everything that is happening.   


1 comment:

Willis Family said...

Wow. You guys are going through quite a journey. I admire your family's strength. We are thinking of you and praying for your sweet family! Thanks for keeping us updated!